Parents of toddler with severe brain damage ask for help to create a “baby bucket list”

The parents of an 18-month-old boy with severe brain damage are asking for help to create a “baby bucket list” to help him get the most out of life.

Casey’s mum Amy said she and husband Zack and big brother Nate, six, were a very active family mountain biking, trail running and spending their free time in the Lakes.

The 29-year-old from Barrow explained how the small family have had to quickly adapt to a new way of living since his birth and they want him to live life to the full but need help.

Casey will be two on Saturday and as well as having Hypoxic Ischemic Encephalopathy Grade 3 from the oxygen deprivation at birth he also has infantile spasms, epilepsy, cerebral palsy, hearing loss and  possible Cortical visual impairment.

He isn't orally fed, so will be having a peg fitted in the near future,
Casey is also at a constant choking risk, as he doesn't have an efficient swallow, gag or cough reflex.

The top of the “baby bucket list” is to be able to buy a specialist terrain buggy for Casey.

Any extra money will be used  to fund any type of none NHS therapy and treatments they can find.

Things, that will help Casey reach his full potential, such as, lights for his new room and lots of other little things to keep him entertained and hopefully, progress that little bit more.

Amy explained how even when pregnant with her son she and her 27-year-old husband Zack they were out walking regularly with his older brother.

She explained: “When Casey was born, things didn’t happen how they were expected too, they went very wrong, very quickly, and I ended up having a crash c section and Casey was deprived of oxygen, we don’t know how long for, but he wasn’t born in a healthy condition."

“Casey suffered a severe brain injury and because of this, is globally delayed."

"We spent a lot of time in NICU before we could come home to our new normal... we have had to learn how to live in a very different manner and have very quickly become medical parents."

“We’re not a family that easily gives up, we still make sure we take Casey all of the places he may never get chance to visit when he’s older, I kind of have a bucket list for him."

“Our specialist buggy, that we have been allocated by the NHS is great, but doesn’t do well on anything much more than flat pavement, it even struggles with curbs!"

“We like to carry him places in a toddler carrier, I strap him to my front and put his oxygen on my back, and his dad carries the rest of his medical equipment, I love carrying him, he gets to experience so much, and he loves it too.. But he’s getting bigger and our walks are having to become shorter, because obviously, he’s getting heavier too!"

“This is why we are desperate to get him a specialised, all terrain buggy... to give him as much life experience as possible! And to be able to find a way to do the things we love to do, as a family."

Anything that can be donated is really appreciated, you guys have helped us out so much all ready and were forever grateful.”

They have already raised £500 and if you  want to help them reach their £2,000 goal then please click here

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